Good morning,
My name is
Michael B. Michael, I am laying on my death-bed reminiscing about my life as a
Designer Baby and how my "perfection" ultimately lead to my death.
It all
started when my parents were talking about having another child, this would be
me. When my brother was still in my mother womb, he developed a very genetic
disease, Osteogenesis Imperfecta Type II which meant that once my brother was
born he would most likely die within the first year due to respiratory failure.
My parents were extremely saddened, my father wanted my mother to have an
abortion, but my mother didn't want that, she wanted to baptize my brother so
he could go to "Heaven." My mother was not a religious woman but she
did believe in the after-life, she grew up catholic and the only thing she
wanted was to baptize her kids and then let them decide if they want to follow
the religion.
After
arguing, my father understood my mother's point and they waited until term. The
weeks leading up to the birth of my brother were discouraging for my father
knowing that his first son will die and he could not do anything about it. When
the birth of my brother came, all the worries that my father and mother had
suddenly went away, the only thing they cared for was their son's birth. They
named him Bartholomew, he was then baptized and my parents never once left his
side. Unfortunately, Bartholomew passed away two months after birth, my parents
were devastated, specially my mother. She stopped going to work and became
depressed, my father used his work to try and keep himself busy. My mother
threatened to leave my father, not because of anything he had done but because
every time she looked at him it reminded her of Bartholomew. My father quickly
called a therapist for married couples, specially couples that have gone
through the loss of a child. They went through a year and a half of therapy
until they could finally look at each other and talk normally, the loss of
Bartholomew was still there, it’s something that you can't get rid of but it is
something that gets better with the years.
A few years
had passed by after Bartholomew's passing, my parents were getting older and
they were reaching their child bearing years. My father wanted a child, someone
he can see grow up and be proud of but he didn't know how to bring it up to my
mother. There was no way around it, he had to be blunt about it, she was hesitant
about the idea but did not shut it down. The only obstacle was my mother's
thought of going through the same pain she had gone through with Bartholomew.
My father was a very successful businessman, many of his friends were at the
top just like himself. They would often meet and talk about business, one day
he mentioned the situation that he had with my mother, when suddenly one of his
friends offered a solution. His friend had an engineering company which focused
on biology, to keep it short, he mentioned CRISPR Cas 9, which was a genome
editing machine that could potentially edit out the DNA which hold the
Osteogenesis Imperfecta. He did mention that initial tests were great and
everything was working fine, the only thing they were unsure about were the
long-term effects of genome editing. My father wasted no more time and went
home to tell my mother, she was scared of the idea but my father kept
reassuring her about it, after a couple of days of discussing the situation my
mother said yes.
The process
begins with the doctors extracting one of my mother's egg and my father
semen and running them through the machine and cut out the bad DNA and edit-in
good DNA. After all the editing is done, they will fertilize the egg and then
insert back into my mother. After that, it will be like any other birth, she
would carry me until term. They did pregnancy testing to see if there were any
complications but everything came out clean, my parents were extremely happy to
know this.
When I was
born they gave me the name Michael B. Michael, my middle name being
Bartholomew, they wanted a part of my brother to be with me and themselves, it
was more of a memoir towards him. Once I was born, I was just like any other
baby, except for the fact that I was a "perfect" baby, there wasn't
any bad DNA in me. Any baby that was genetically modified is considered a
"Designer Baby," even though my parents didn't alter any of the
aesthetics about me.
I grew up
like any other privileged child, I went to private schools all my life. I would
always have to go back to the doctor to make sure that everything was fine with
my DNA, to make sure that there weren't any late on-set mutations. Making
friends for me was never an issues, the issue can when I was trying to connect
with a girl on a relationship level. I blame my perfect DNA, unconsciously I
couldn't move forward with another person unless I knew they were also perfect,
on a molecular level. This was the biggest issue in my life, not being able to
find somebody that I could fully connect to.
My father
trained me and helped me understand the business that he was in so that one day
I can take over the company and run it myself.
Once I turned
25 years old, my father handed the company to me, both of my parents were old,
my father nearly 70 and my mother 65. My mom was diagnosed with breast cancer,
but it was caught early and she was treated with chemotherapy, until she was
cancer-free. Fighting cancer took a lot out of my mother, she was not the same
since, she was ready to give in. The day came were my mother had passed away
due to natural causes. My father passed away the year after due to natural
causes, in my opinion, he couldn't live without my mother.
I was only 26
years old when I no longer had my parents. This was a very depressing time, I
was all alone, the only thing that I had left was my father's company. During
this depressing time, I stopped going to the doctor to get my regular check-up.
When I turned
30 years old, breathing started becoming difficult and I felt weaker. I
immediately visited the doctor to get checked up. The doctor told me that he
had found my mutated DNA that had a late on-set. This mutated DNA was holding
Osteogenesis Imperfecta Type II. The prognosis for this disease is usually a
year, so that is the amount of time that I had, and the time is almost running
out.
I am laying
on my death-bed reminiscing about my life as a Designer Baby and how my
"perfection" ultimately lead to my death. I completely had cut all
ties with my friends when my parents died and I was depressed. I am completely
alone in this hospital room waiting to die. Being a "perfect" person
was not worth the ultimate isolation that I had to go through, I would've
rather had my parents try without the genome editing and hope that I wouldn't
have developed the disease because at the end, their solution backfired. The
only positives things that are coming out of this is the fact that my parents
have passed away already and don't have to see another son pass away and that I
am the last person in my bloodline with this mutated genes, another person won’t
have to go through the same pain that I went through.